Childhood Cancer Survivor Program to Empower Action in Care

Abstract

This project is a critical initial step towards addressing systemic problems in transition of care and has the potential to decrease morbidity of adult childhood cancer survivors. The study includes three components: focus groups, intervention refinement, and a randomized controlled pilot study. All participants are adult survivors of childhood cancer, men and women from three ethnic backgrounds (Black, Hispanic, White). The pilot is designed to assess the acceptability and feasibility of a community-based intervention to engage childhood cancer survivors more actively in cancer follow-up care. Outcome measures in the pilot study include: knowledge of late effects and follow-up care, fear of relapse, perceived efficacy to communicate with physician, access to childhood medical records, self-efficacy to obtain medical records, and health status. Pilot participants are enrolled from a study of health behaviors among childhood cancer survivors, on which Dr. Sharp is a co-investigator.

The grant supporting this research also supports Dr. Sharp's career goal of conducting independent research focused on patient-oriented cancer prevention and survivorship in minority and underserved groups. Her mentors include Marian Fitzgibbon, Kevin Oeffinger, Nadine Peacock and Timothy Shanahan.

Affiliated Center/Program

Principal investigator
Funding Agency

National Cancer Institute of the National Institutes of Health (Mentored Patient-Oriented Research Award, grant No. K23CA124451)

Start date
08/01/2008
End date
07/31/2014
Total award
$769,854
About this grant

In Sept. 2009–Aug. 2010, supplemental funding was provided by the American Reinvestment and Recovery Act of 2009. In 2013, this grant was extended for one year with no additional funding.

Related publications


See publications supported by this grant on this PubMed list.

Stolley MR, Sharp LK, Tangney CC, Schiffer LA, Arroyo C, Kim Y, et al. Health behaviors of minority childhood cancer survivors. Cancer. 2015 May 15;121(10):1671-80. [See abstract.]

Sharp LK, Carvalho P, Southward M, Schmidt ML, Jabine LN, Stolley MR, et al. Electronic personal health records for childhood cancer survivors: an exploratory study. J Adolesc Young Adult Oncol. 2014 Sep 1;3(3):117-122. [See abstract.]

Seltzer ED, Stolley MR, Mensah EK, Sharp LK. Social networking site usage among childhood cancer survivors -- a potential tool for research recruitment? J Cancer Surviv. 2014 Sep;8(3):349-54. [See abstract.]

Fitzgibbon ML, Tussing-Humphreys LM, Porter JS, Martin IK, Odoms-Young A, Sharp LK. Weight loss and African-American women: a systematic review of the behavioural weight loss intervention literature. Obes Rev. 2012 Mar;13(3):193-213. [See abstract.]

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